Luke has a severe form of Ahc with drug resisistent epilepsy.
He has regular 999’s for his severe and life threatening tonic clonic seizures and is no longer for
He has a gastrostomy for feed and hydration for his almost daily Ahc attacks lasting minutes/hours/days or weeks.
He lost the ability to walk 2 years ago.
Luke has limited speech and poor swallow so on liquidised diet when well.
He is intelligent and deeply frustrated by his condition therefore can
display severely challenging behaviour by causing bad bites to carers, kicking and pulling hair.
Despite this he is a gorgeous kind fun loving chap who loves his mum and tries to live life to the full