Lucie Bailey

lucie

 

My name is Lucie Elizabeth Bailey.  I was born on 14th November, 1986 and I have Alternating Hemiplegia.

I have experienced many things in my life.

I could sit up by myself at 8 months and started walking at 2 years and 2 months. At 4 years old I started nursery school and moved into the infants at 6.  I was nearly 12 when I moved up into high school.  I attended a girl’s school for moderate learning and spent 5 years there.  I was able to pass a couple of exams at Welsh Grade but my greatest achievement was being awarded The Princess Diana Award for Outstanding Achievement.  After school I went to a residential college for learning disabilities for three years and then onto drama college.

 

I have enjoyed abseiling, climbing, zip wiring, sailing and horse riding.  I used to like going on all the fast and scary rides at the theme parks. I enjoyed my work experience at the local nursery school, I helped out twice a week for a year and was sorry to leave.

My hemiplegic attacks have always changed their pattern every couple of years.  When I was younger I would have 5 days of attacks and then between 10 and 14 days break.  I had three years of migraine attacks and a bilateral attack would always follow. (My Mum used to keep buckets everywhere because I was always sick after a migraine.) When I was about 12 I started having only bilateral attacks which would last anything from half an hour to 8 hours.  At 16 my foot would have a hemi and I would not be able to walk for 2 to 3 days at a time.

My life changed in October 2009.  I caught a cold virus and had a bilateral attack and didn’t recover.

I cannot walk anymore and only have use of my left arm and hand and my right hand.  I cannot sit up by myself either but……..my voice still works and I am very good at letting everyone know what I want!

Even though I cannot walk I can still enjoy lots of exciting activities.  I have recently come back from an adventure holiday with my Mum and Dad.  I went abseiling and climbing in my wheelchair. I was hoisted into a canoe and went really fast down the zip wire.  I also went on a giant swing in the sports hall.

Since my virus my hemiplegic attacks have changed.  They now only last a few minutes and I usually have one bilateral attack per month. I do not like bright lights so I always wear sun glasses. Loud noises, crowded places and water can bring on a hemiplegic attack.

I enjoy our annual family meetings as I like to see all the other children with alternating hemiplegia.

My best friends are Joanne, Mona and Lizzie.  I like sending cards to Stephen who has this condition and lives in Ireland.