Laura Slade has a beautiful four year old niece Naomi who was diagnosed with Alternating Hemiplegia of Childhood (AHC) when she was 8 months old.
For this reason Laura decided to run the Brighton Marathon 2015 to help to raise money to find a cure for AHC.
She raised over £2000. Well done Laura!
Lucie’s Christmas card swap
Jill created a justgiving page link to our main charity page on justgiving on behalf of her daughter Lucie. The page is called Christmas card swap and was aimed at people who prefer to donate at Christmas instead of sending cards.
Joanne’s Christmas card swap
Tracy created a justgiving page link to our main charity page on behalf of her daughter Joanne. The page is called Christmas card swap for AHC and was aimed at people who prefer to donate at Christmas instead of sending cards.
Jeans for Genes day 2014
With the help of our families and friends, AHCUK raised a total of £340.22 on Jeans for Genes day 2014.
Thank You to everyone who donated and supported us.
Activity Evening at The Loft, Burnely.
This event was organised by Jenna Stanworth to raise money for our group.
The event took place on 7th February 2014, between 7.00 p.m. and 10.00 p.m. at Bull Street.
Children were welcome as there was a bouncy castle, face painting, children’s entertainment, balloon animals. There also was a cake stall and a buffett, and a DJ – so plenty of music and fun. This was a joint effort with dispraxiya so the proceeds were halved.
Hove to Brighton Marina… and back!
We are being sponsored by ACH Care Homes.
Our day started off wet and windy but the sun came out eventually. We had 66 people walking including some children. Their was four young adults with Alternating Hemiplegia taking part, Natalie, Lizzie, Joanne and Lucie.
ACH donated our T-Shirts and we all wore them with pride. Many people stopped us during the walk to ask about the condition so not only did we raise money we raised awareness of the condition as well.
It was a great success and we raised more than was expected. ACH Care Homes donated a lovely cheque to our girls in the garden of Cloverdale House after our BBQ. We would like to thank all the staff and members of Cloverdale and Bridgewater House for all their hard work and efforts into making the day such a great success and raising so much money for our group.
We had many friends and family sponsors including Biggin Hill & Westerham Lions Club. They quoted ‘We were delighted to sponsor Lizzie in her sponsored walk with The Alternating Hemiplegic Support Group. We are always keen to help young people who raise money for charity or undertake charity work and as Lizzie is known to us the daughter of one of our members it was an easy decision to sponsor her (even though, to be honest, most of us know very little about the condition). It is perhaps one of the strong points of Lions Clubs, that they support small charities who do not have the resources (or name) to raise, on their own, the funds they need to carry on their work.
Tombolla stall at Datchet Village Fete – 6th July, 2013
Tracy and Jill held a tombola stall at the fete. Family and friends kindly donated unwanted gifts. We raised £100.00 and were very pleased with our efforts.
Sponsored Swim in Indonesia
Tom (Patrick’s Dad) is organising a sponsored swim from the mainland of Java, about a kilometre to a small island off the coast. It’s not very far but it’s open ocean with strong current, shark and jellyfish. We wish him luck. Date to be decided.
We have received a donation from Nicola MacMillan – here is what she said.
I had planned a small party for my husband’s 40th birthday and was looking for some family entertainment. When I came across a mobile casino company, I thought that this would be an ideal opportunity to do some fundraising at the same time. I put together a poster explaining Alternating Hemiplegia and a little information about the support group, then along with some photos to personalise it, I used a big pinboard to advertise my aim for the evening. I had three prizes for 1st, 2nd and 3rd place for who had the most chips left at the end of the evening, and made a lovely profit of £60.00 for the group. Everyone had a fantastic time and said what a great idea it was, and the best bit, there was hardly any work involved, just good fun.
My cousin, Lucie, suffers from Alternating Hemiplegia.
Lucie & Nicola
A donation from Indonesia
Tom, Lena and Patrick who live in Indonesia have raised £300.00 for our group. Patrick is the only child in Indonesia who suffers from Alternating Hemiplegia. We are extremely grateful to receive this money for our group.
A donation from Datchet Village Group
We have received a donation of £150.00 from the proceeds of The Datchet Village Fete in Datchet, Berks.
A big thank you to the group for their donation.
A donation from Beaconsfield School, Buckinghamshire
Beaconsfield School, Buckinghamshire held a Christmas Bazaar, which through the money they raised, enabled them to donate £300.00 to AHCUK. This is much appreciated and will be very useful to our support group. Beaconsfield School have past and present pupils affected by AHC, and have told us, “They’ve all been an inspiration to both staff and pupils!”
So heartfelt thanks to them for their donation.
We have received a donation of £500.00 from Catsfield Amateur Dramatic Society.
A member of staff at Joanne McCarroll’s house is involved in the above dramatic society.
Our group was put forward to receive a donation from their Christmas Pantomime and we were extremely lucky to be chosen to receive their donation of £500.00
We would like to express our sincere gratitude to CADS for the first donation to AHCUK