Olga Giner, who works at Lucie Bailey’s house, hosted a Flamenco-themed event to raise money for AHCUK and also to raise awareness of AHC. Olga writes this about the event…
“As part of our university courses, my classmate Lara and I had to put on an event, so we decided to host a Flamenco/Spanish event with Spanish food, live flamenco show, sangria demonstration and much more. I have known Lucie Bailey for a few years now from working in the care home in which she lives, in Brighton, and I know her condition is not well-known. Therefore Lara and I considered that supporting the charity AHCUK, which raises money for research into Alternating Hemiplegia of Childhood, would make the event more meaningful as well as being a great way to raise awareness and money for them.”
“Jill Bailey (Lucie’s mum) helped us with some information about the condition and gave us a banner and some leaflets to put at the venue during the event. She also provided some wristbands and trolley-coin key rings to sell during the event in order to fund the charity.”
“It was a real shame that Lucie and Jill could not come to the event, because we are proud to say that the event was an incredible success and we are sure they would have enjoyed it to the same extent that everyone else did. However, without a doubt, the best of it is that we collected £55 between ticket sales and on site donations, including donations from the purchase of the items Jill gave us to sell. We know this is not a massive amount but…every little helps and we definitely raised awareness.”
Well done Olga, and are absolutely correct – every little helps!
Thank you for your contribution.